• Building a Path to Support: Navigating the Stages of Financial Planning

    Financial planning often takes a back seat to the day-to-day caregiver responsibilities. This session will explore ways to develop a long-term financial plan when your child is fully dependent. Additionally, it will help families understand the numerous stages to be considered while developing a special needs master plan for their loved one.

    Presented by Mary McDirmid with All Needs Planning; top considerations they hear and help their clients with include:

    government benefits
    funding their lifetime
    tax efficiency
    insurance
    housing
    employment
    trusts
    ABLE
    estate planning

    All Needs Planning believes that their clients are very capable of doing this planning, the emotional aspect cannot be overstated as the biggest culprit in procrastinating. Understanding how math, emotion and habits intersect is their specialty.

    Free
  • Upcoming: You Can Never Be Too Prepared: Pediatric Disaster and Emergency Preparedness

    Children have unique medical, emotional, and developmental needs during disasters, and preparing to meet those needs is essential for effective response and recovery. This is even truer for children with a serious medical condition.

    This event will provide a platform for learning and sharing best practices to create an actionable plan that prioritizes the safety and care of children in times of crisis. And include action items you can take now as the caregiver to make sure you are always prepared for the unexpected.

    Free
  • The Holidays: Coping Through the Season

    For families of children who had or are living with a serious illness, the holiday season can be a mixed bag—one filled with joy, comfort, and love, but often also anxiety, sadness, and isolation. Holidays can intensify emotions, highlight the passage of time, and remind us of what was or what might never be, making even cherished traditions feel bittersweet. At the same time, they can offer opportunities for connection, reflection, and new ways of finding peace or joy through adapted rituals and shared experiences.

    Anticipating the holidays often brings its own emotional weight, but through honest conversation and mutual support, families can prepare for and navigate the season with greater understanding.

    Join members of the Network in a moderated discussion about the complex emotions that accompany significant days, strategies for coping, and the power of ritual and connection during the holiday season.

    Free